Update: Sweet baby Avery passed away on 4/30/12. Rest in peace, little angel.
Avery Lynn Canahuati, the 5 month old daughter of my childhood friend Laura & her husband Mike, was diagnosed with Spinal Muscular Atrophy (SMA) last Friday. SMA is an incurable genetic disease that will likely take Avery’s life before age 2. Instead of spending their time being sad & angry, Laura & Mike decided to make every minute of her life here on Earth count. Please join me in praying that Avery has a full & wonderful life. Let us lift up her parents as well, that they have the strength and courage to continue sharing their difficult story to inform others so that one day there will be research for SMA and God-willing, someday… a cure. Follow their blog and watch Avery check items off of her bucket list!
Learn about this terrible disease. Be inspired by this beautiful baby girl.
http://www.averycan.blogspot.com/
God Bless your whole family! You are all an inspiration. I cannot imagine what you are dealing with, but I pray that you are all okay and Avery will be happy and loved! xoxo
will be praying for you all and your daughter and family
You are great parents and an inspiration to us all. Avery is very lucky to have parents like you.
I love your blog. You are true inspirations and very special people to think of bringing awareness to SMA while attending to Avery’s needs. Avery has such special parents and you have such a special daughter. May God bless all of you. You are a BEAUTIFUL family. Enjoy each other and enjoy life!